It's been almost two whole weeks since I've gotten to nurse my sweet boy...torture for him, torture for me (I'm telling you, interrogators should use a breast pump to get the answers they are looking for, their subjects would cave in no time!). I'm supposed to be pumping 8 times a day but I'm doing good to get in 6 rounds. It's incredibly time consuming and difficult to fit in the day while caring for a 3 month old and 3 year old. But, there is light at the end of the tunnel, hooray! The doctor says I get to try breastfeeding in
Our pediatrician has already sent a referral up to Seattle Children's Hospital for Ezra. The GI specialist is definitely in favor of us going up there as well, and thinks the hematologist should also refer us to an immunologist. In her words, she thinks there's a bit of a gap in the type of care/attention Doernbecher's is able to offer someone like Ezra, and thinks it's time we go elsewhere. After three months with no diagnosis we couldn't agree more! We are thankful Doernbecher's is around and that we have been able to have the procedures Ezra has needed done within our own state so far...but he really needs more attention than they are able to provide him within their areas of expertise.
In the meantime, we are STILL waiting for the WAS results. We are rechecking blood counts every one to two weeks (Ezra's platelets have seemed to plateau in the 70,000 range for the past month, white blood cell count is still through the roof, and hemoglobin is still very low). We will now be checking Ezra's weight at the doctor's weekly, or every other, to make sure he is gaining enough on the formula (but I am definitely crossing my fingers that we'll be back to breastfeeding as planned in
Three months has been such a long time to go without a diagnosis but we are starting to realize it might be much longer before we have answers. Thank you for your continued love and support. We definitely continue to need all the prayers we can get...this waiting game is not easy!
And because no update is complete without a picture, look at this cute little side-by-side Josh put together of the boys (both at 3 months, wearing the same onesie - Judah on left, Ezra on right):