MEET EZRA

Meet Ezra, Extraordinary Ezra.

Our second son Ezra was born on April 20, 2013. He has a longer medical history than many of us will have our entire lives. He was diagnosed with Juvenile Myelomonocytic Leukemia (JMML) on 08/23/13 and Noonan Syndrome (PTPN11) on 10/14/13.

Many of you have expressed your desire to contribute to Ezra's ongoing medical expenses and we are incredibly grateful and humbled by your generosity! In lieu of donating directly to our family, we encourage you to donate to either of these organizations who are leading the way in helping children like Ezra who have Noonan Syndrome:



    Watch Ezra grow:





















    2 comments:

    kellym9999 said...

    Those pictures are adorable! You have a beautiful family. We have a 13 year old daughter with Ns

    Anonymous said...

    I came across your blog today while on Instagram and saw a picture of your sweet little boy. Your blog is literally the exact same story of our life for the past year and a half. Our sweet little girl, Keira, was born on April 27,2013 with literally the exact same weight, health problems, mysteries, etc. after searching for a diagnosis, we received the same one as well, PTPN11 with Myeloproliferative disease. I felt so isolated this past year going through what I feel as though no one understands. But now, I know that your family was going through the same things at the EXACT same time as mine. God bless your little Ezra and your family. Continued good health to him!!! Coleflynn@hotmail.com